Random Update

I know I promised a Loop rebuild, but it hasn’t given me the “Loop is no longer available” message of doom yet, so I am milking my extra time. My Apple developer account already automatically renewed, so I’m not sure what it’s waiting for. I’m definitely beyond a year on this build. Please let me know if you understand why this happens!!! (I love learning about these things – TELL ME EVERYTHING!!)

I saw my doctor last week. He’s an incredible human. I travel an hour by air OR 7 hours by car to see him because of how he focuses on person-centered care. Person-centered care doesn’t exist with my current health insurance company. Everyone is supposed to smoosh into some pre-shaped cookie cutter, or die.

In a 1-hour visit, my doctor: (1) gave me two trigger point injections and completely resolved the tension headache I’ve been dealing with, (2) got me thinking about WHY I feel good about my diabetes right now, (3) introduced me to Afrezza inhaled insulin, (4) completed a breathing test in case insurance will need it for coverage of Afrezza, and (5) did a retinopathy check in his office.

The trigger point injections I received were lidocaine. I am so happy with the results – they worked within 5 minutes. I had been suffering with the same tension headache for over a month and this method solved everything in two injections. It’s so nice knowing what works, and that this is something I can request at urgent care so I’m not sent for a spinal tap (insert eye roll here, and see here if you don’t know what I’m referring to).

I feel good about my diabetes right now. This is going to be its own post. Come back tomorrow for a greater explanation!

Afrezza inhaled insulin is SO COOL! I was explaining how my OmniPods fail so frequently and Doc asked if I had tried “tethering,” which is using long acting insulin injections to supplement pump use (and therefore prevent Ketoacidosis). I had never heard it referred to this way, but it makes sense. Unfortunately, Lantus (the only long acting my insurance will cover) only lasts in me for about 20 hours, so I would have to take it twice a day for it to make sense. The alternate approach he offered was to use Afrezza for highs and meals to take stress off the pod’s cannula. I tried it for the first time yesterday and I absolutely LOVE it!

One downside to it is that some pharmaceutical moron decided to give it its own “unit” measurement. As a result, the inhaled insulin is dosed similar to what a U-50 insulin would be (meaning you take double the units you’d take for your meals using your U-100 insulin like Humalog or Fiasp). It works VERY quickly – like within minutes. It’s unbelievable to me watching my Dexcom line when I use it. I’m sincerely impressed. The other downside – it’s not on the OptumRx formulary, so I’m about to fight like hell (again) for coverage.

Finally, the medical assistant (who I also LOVE) did my retinopathy screening in the office. She took a photo of each eye using an iPhone with the flash on. Those photos were digitally sent to a central location, and I received the results the next day. 20 years and I’m still clear (for now)! I’ll call this a win, for sure.

What does your doctor do for you that keeps you coming back? Does your health insurance allow for patient-centered care? Tell me about it in the comments, on Twitter, or at sonjac@nevada.unr.edu.

Published by

Sonja Cunningham

20 years survived with T1D, 2021 Executive MBA candidate at the University of Nevada, Reno

One thought on “Random Update”

  1. My diabetes doc just retired, so I have a new one, and we are still trying to discern how it will go. However, I picked her because last year, I was in the hospital following surgery, and she was doing hospital rounds. I had not had insulin for 30 hours, and that was an injection of 8U of Lantus. I could not get them to give me insulin. My blood sugar was rocking, and she walked in. I had never met her before, and I was under the care of a hospitalist who I met before surgery but had not seen since.

    When I told her what was going on, I was about 2/3 rds out of it on pain meds. She blew up. I thought it was so funny. She marched to the desk and asked them why they were trying to kill me. It took about 15 minutes to get insulin. I loved that. I got my insulin, and I got out in 30 hours. God Bless her.

    So when my doctor retired I said I want her. She seemed like a keeper.


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